It’s been quite an eventful few weeks for Sara since the last post. Life at SickKids for a heart baby is often a rollercoaster. One day things seem good and on the upswing, and the next day your baby stops breathing in your arms for no known reason. It’s exhausting, and you need to spend each and every moment that you have loving your baby. In Sara’s case, this is often all that Danielle and Dave can do. Love her and touch her, and if they are lucky – hold her.
Danielle and Dave got a small Christmas tree for Sara’s hospital room. The hospital is so cold and sterile, but this small touch may make it more bearable in the days leading up to Christmas.
Sara’s heart and little body have been puzzling her Doctors. Twice now Sara has stopped breathing, and the reason for that hasn’t been found yet. The doctors at SickKids have been doing many tests do try and understand what is happening with Sara. They have determined that she may have damage done to her small bowel because of circulatory issues, and placed Sara on a 7-10 day stomach rest, where she is allowed to consume nothing orally. Sara was hooked up to and IV and TPN Nutrition to keep her little body going – but 10 days is a long time to have an empty belly, especially if you are a baby. After another episode where Sara stopped breathing while in her Mother’s arms, the doctors have done multiple Echos, a MRI and yesterday Sara went into the Cath lab. Danielle and Dave have been told that they will get some answers on Monday. It’s a heartbreaking and frustrating process when you can do nothing to help your baby and the Doctor’s have no real answers to your many questions.
At this point, it’s a waiting game for Sara’s parents…they have to wait, trust in the healthcare system and believe with all of their hearts that they answers are coming and Sara’s little heart will be able to sustain her so she can grow and be happy at home with her family. Here’s a family photo of Danielle, Dave and Sara
. As they face the unknown and fight for their daughter they are spending Christmas away from home and in a strange city. If you would like to help them out financially, you can etransfer to galgayd@gmail.com, or email fellow heart Mom Krista at kspearns@hotmail.com . Sara’s Aunt and Uncle came to visit her from Newfoundland this week…Here they are in her hospital room…When some answers are known, I’ll post a new update. Until then, please pray for Sara and for strength for her parents and family.
Sara's Heart of Gold 